Baby with heart murmur, I am so scared all the time, anyone have knowledge on this?
Thursday, January 10th, 2008AMBER M asked:
My son is 15 months old and he has BAV (bicuspid atrial valve) & aortic insuffieciency. From what I know so far from DR visits is that he has a leaky aortic valve which can cause narrowing, at this point he is in the trivial to mild numbers of leak. However when someone tells you that your son has a heart condition its not trivial to you. He sees a cardiologist every 6 months for an echo and ekg and I have been told that he will prob. have valve replacement in a few years, but I dont understand when I read on here people who have grown out of this? Is that possible that a valve can repair itself? And why would a dr only want to see him 2 times a year? Its like they tell you its serious, but we’ll see him in 6 months, it cant be that serious right? Wouldnt they want to see him every month or something. He has no blueing around lips, great pulses, great oxygen, Am I just overreacting by panicking all the time, I guess I am just a paranoid parent, but this over whelmes me every day.
To look at him you would never think that he had anything wrong, he is 25 lbs, higher end of growth chart, no blueing, no failure to eat or drink, no fatigue, nothing that you hear of other heart complications
Question posted courtesy of: Lance
My son is 15 months old and he has BAV (bicuspid atrial valve) & aortic insuffieciency. From what I know so far from DR visits is that he has a leaky aortic valve which can cause narrowing, at this point he is in the trivial to mild numbers of leak. However when someone tells you that your son has a heart condition its not trivial to you. He sees a cardiologist every 6 months for an echo and ekg and I have been told that he will prob. have valve replacement in a few years, but I dont understand when I read on here people who have grown out of this? Is that possible that a valve can repair itself? And why would a dr only want to see him 2 times a year? Its like they tell you its serious, but we’ll see him in 6 months, it cant be that serious right? Wouldnt they want to see him every month or something. He has no blueing around lips, great pulses, great oxygen, Am I just overreacting by panicking all the time, I guess I am just a paranoid parent, but this over whelmes me every day.
To look at him you would never think that he had anything wrong, he is 25 lbs, higher end of growth chart, no blueing, no failure to eat or drink, no fatigue, nothing that you hear of other heart complications
Question posted courtesy of: Lance
